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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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My partner managed to record just a snippet of a Parliamentary Select Committee debate on RA. It looked really interesting and one Labour MP was promoting the benefits of early intervention and keeping people in work etc. He asked Chief Exec of the NHS if GPs are specifially trained to recognise RA in early stages and he confessed that they are not. They talked about some research in the form of an 18 week Pathway for patients and better training for GPs as it is accepted that RA affects every aspect of a person's life etc. There were comments on the fact that services in Lancashire, particularly Bolton, are extremely good (are you getting star treatment Jean?). Then the recording ran out. Anyway - could anyone tell me where I could get information on the outcome of the debate or what recommendations were made? It took place on 23 November and was broadcast on BBC Parliament yesterday.
Julie
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Hi Julie,
Lovely to 'see' you! My close friend's hubby is clerk to the MPs and will know. I will e/m her now and ask.
I wanted to ask for your e/mail address anyway. I think one can e/m privately on here, if so, I will do this now and send you my address, if that is okay?
Much love,
Amanda
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Julie,
There was a link to that debate on the old forum and I watched some of it this morning. I think it shows the whole debate, I was going to go back to it later but the forum disappeared!
We supposedly are going to get a link to the old forum tomorrow so you should be able to see it then.
Ailsa was there.
Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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 yes u can email on here wow saves alot tiem and pm to. all secure. thks julie re post wasnt aware it on,myabe try bbc site for more info. lv inky07  cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 872
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Hi Julie There is video of 23rd November available on www.parliament.uk~ Liz xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 357
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Here ya go folks :) http://www.bbc.co.uk/ipl...es_Rheumatoid_Arthritis/2012 Fundraising for the National Rheumatoid Arthritis Society (NRAS) http://uk.virginmoneygiving.com/RoboJo
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Thanks Jo, I can finish watching it now!
Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Hi Julie
Will be watching this shortly. Thanks for the link. As for star treatment - yes, they do look after me very well. I have just e-mailed my
consultant and also Tim Evans, the Chief Exec to tell them - but no doubt they know already!!
Love Jeanxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 714
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It took me an hour to watch this - please all of you watch it. Finally there is a Committee who cares and it gave me much hope that RA is going to be taken seriously.
I did shout at the screen a few times
(a) They said that the Department of Work and Pensions were aware of the implications of RA (obviously not seen the posts on this site
when members have been turned down for benefits).
(b) Patients who have been previously diagnosed with RA are not having their appointments moved to make way for newly
diagnosed patients to meet the 18 week criteria. (I know many of you have had your appointments changed).
(c) Rheumatoid nurse specialists are available to support patients in between appointments with Consultants. (I was diagnosed in March
and I am yet to see anyone but my Consultant).
I do hope that this Committee kicks some a*****ses and I will be very interested to see what happens over the next few months with
all the promises that were made in front of this Commons Select Committee.
Jackie
xx
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 872
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thanks Julie for very useful link - i managed to watch it all today and like Jackie recommend everyone to watch it..... i shouted at the screen a few times too ....
~ Liz x
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Rank: Member
Groups: Registered
Joined: 11/27/2009
Posts: 15
Location: Reading
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Is that Ailsa on the end of the row in the public part?
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 357
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I've watched it a few times and have jotted a few points down and some names of those taking part. They seem to be missing a wonderful opportunity here, I know there's a few of us on the forum that do talks to medical students, so they can see first hand the impact RA can have on someone, which in my mind goes further than a student simply sitting in a lecture or reading from a text book. The only problem with utilising volunteers in the issue of raising awareness, is the massively varying treatment people with musculoskeletal problems people have in the Uk, as is often the case, it's a postcode lottery. I'm fortunate that my GP practice is amazingly supportive of a number of different long term conditions and organise a number of awareness events throughout the year, sadly not all GP surgery's are like is, especially going on the evidence of some of the folks I've spoken to over the years who were just given ibuprofen even though their blood test results clearly indicated RA. There needs to be big changes, from the top down, but also they could use the experience of people with long term conditions to change things for the better from the patients end of the system too. Just my 2p's worth :) Jo. 2012 Fundraising for the National Rheumatoid Arthritis Society (NRAS) http://uk.virginmoneygiving.com/RoboJo
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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oh dear link says no longer available on bbc iplayer. and i didnt get to listen to it. lol inky07 cuddly cats make my world seem so much more fun
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Rank: Newbie
Groups: Registered
Joined: 12/7/2009
Posts: 5
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Rank: Member
Groups: Registered
Joined: 11/27/2009
Posts: 15
Location: Reading
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Also - in written form (Uncorrected minutes):- http://www.publications....ubacc/uc46-i/uc4602.htm
RichardL
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Hi thank you so much ok il save it now. cheers inky07 cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 331 Location: South London
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Unfortunately I didnt get to watch it I have a mac and I couldnt find a link on the page. However I read most of the transcript and am grateful for these being raised in Paliment and the questioning (and frank answers). Which highlighted not only on the early diagnoses but the question of support and DWP's methodology. Lets hope it continues 
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 89 Location: Braintree, Essex
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Here, here to Jo's 2p worth, iv not seen it yet but off to have a look now, its exciting that its been talked about great news coz xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 690
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Thank you Julie for bringing this informative debate to our attention, and Jo for the link.
It really has opened my eyes, and I consider myself to have been very lucky with my early diagnosis and quick access to a consultant. One year on after my first presentation, and in January it will be a year since my diagnosis was confirmed I'll be starting Anti-TNF after not being able to take sulf and mtx - not bad going?
Love,
Babrara
XXXXX
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